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Archive for February, 2014

Today is Rare Disease Day.  David’s life was shortened by Battens Disease.  We know first hand the affect of living with one of these horrible diseases.   Today I am just writing to ask you to remember and pray for those who are boldly caring for and loving their family members affected by one of these rare diseases.  It can be a lonely battle.  The theme for this year is:

“Join together for better care!”

The following is a quote from the Rare Disease Website:

Many people with rare diseases can say that access to care involves not just one person, but a team. This year on Rare Disease Day 2014, we celebrate all who come together to support the rare disease community. From the doctors at a center of excellence, to the home health nurses who provide care on a daily basis, this year is about the unsung heroes who commit themselves to a community that might otherwise not get the attention it deserves. – See more at: http://rarediseaseday.us/about/goals/#sthash.jPGQaAGO.dpuf

To those who joined with us to love and care for David we say thank you.

David’s Dad!

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compass 10 yearsHave you ever had a question stuck in your head that just won’t go away?  Here are a few that have been bumbling around in my mind for the past six months or so.

  1. How big should David’s Refuge grow?
  2. Who do we need to hire to accomplish that growth?
  3. As we expand our sphere of influence how do we hold firm to our mission and vision?
  4. What will David’s Refuge look like in five years?  Or ten?
  5. How much will all this cost?
  6. Where will we find the money to finance our growth?

Great questions that all beg to be answered. I wonder how you would answer these questions.  As you think of David’s Refuge what would you say we will look like in five years or ten?  Do you have an opinion as to how big we should grow or who we should serve, or how we could do a better job at accomplishing our mission?  I would love to hear from you.  Your input and perspective would be very helpful.

This Saturday (03/01/14) a group of board members, volunteers, providers, and past guests are going to meet to begin the process of helping us answer these questions. Our goal is to create a strategy that can be passed on to our Board of Directors that will give us some tracks to run on for the next five to ten years. I would love to share your thoughts and ideas with this incredible group of people.  Would you take a few minutes right now and answer one or all of the questions that are keeping me awake at night.  You just might be the answer to my sleepless nights! 🙂  All you need to do is click in the box under “Leave a Reply” and share with me your ideas, thoughts, or comments.  I’m looking forward to a good night’s rest!

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gauge 1

The voice on the telephone line was obviously stressed.

“I’m sorry but we are going to have to cancel our reservation this weekend at David’s Refuge.”

After a painful few moments of silence the tears began to flow.  Rory just listened as the woman poured out the brokenness of their marriage.  She then said,

“I wished we would have come six months ago.”

It sounded as if it were over.  No hope.  Too late.  “If only we would have…..”

gaugeTheir gas tank was dry.  After caring for their children, after holding down jobs, after running from one doctor to the next, after one more fight, after wrestling with the fear of the future and the unknown, their relationship sputtered and stalled.  Intimacy was a fading memory.  Laughter a rare intruder.  Communication dissolved into short staccato burst of who will pick up the dry cleaning or buy bread at the store.

Sadly many couples simply give up when they get to this point.  Many divorce.  Some live as roommates.   Others rip each other apart, only deepening the open wounds they already have from living in a broken world.  Hope is lost.

Yet is hope really lost?  I don’t think it is or has to be.  Let me ask you a question.  If a friend told you they ran out of gas on the highway and decided to abandon their car for good what would you say to them?   You would tell them they are crazy.  Yes, it may have to be towed, yes they may have to do a little maintenance to get it started, but all it really needed was a gallon of gas.  I wonder how many marriages have ended when all they needed was a gallon of gas?

The woman who had to cancel knew six months ago their marriage needed help.  The gauge on their relational dashboard was dangerously low.  But like many of us she ignored the warning signs, thinking they could keep going without checking the oil and filling their gas tank.  Excuses were made, time not made, and lies believed.

As you look at the gauges on your relational dashboard what are they telling you?  Is it time for a tune up?  Are you running on fumes and simply need to pause long enough to fill your tank?  Don’t ignore the signs or that clunking sound.  Be proactive!  Don’t wait until you have to say, “I wished we would have come six months ago.”  Care for yourselves and for each other.  Ask for help.  All you may need is a gallon of gas.

PS:  The woman who called went to get some counseling with her husband, took some time to refill their gas tanks, and have signed up again to come to David’s Refuge.  🙂

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